HAEA Community Connections Hershey, Pennsylvania
Jun 13, 2026
12:00 PM - 3:00 PM
Community Connections Nashville, Tennessee
May 30, 2026
12:00 PM - 2:30 PM
Community Connections Del Mar, California
May 15-16, 2026
The event is now over and was wonderful.
Check out some of the details here.
Camp Brady at The Painted Turtle
Apr 9-12, 2026
Camp Brady at The Painted Turtle
HAEA Puerto Rico Community Connections Lunch
Nov 1, 2025
11:00 AM - 3:00 PM
Community Connections Connecticut - Apple Picking & Lunch
Oct 25, 2025
11:00 AM - 3:00 PM
HAEA Detroit Area Community Connections Event - Football Bowling, Cornhole, Arcade Games, and Dinner
Oct 4, 2025
6:00 PM - 8:00 PM
HAEA Birmingham Area Community Connections TopGolf Event
Sep 28, 2025
12:00 PM - 3:00 PM
Camp Brady at the Painted Turtle Q&A
Sep 16, 2025
7:00 PM - 8:00 PM
2025 Virtual Capitol Hill Campaign
Sep 15, 2025
1:00 PM - 2:00 PM
HAEA Chicago Area Community Connections TopGolf Event
Aug 10, 2025
1:00 PM - 4:00 PM
2025 US HAEA National Summit
Jul 10-13, 2025
HAEA Community Connections Bowling and Lunch in Orlando
May 17, 2025
11:00 AM - 1:00 PM
hae day :-)
May 16, 2025
12:00 AM - 11:55 PM
HAEA Community Connections Dinner Virginia
Apr 15, 2025
6:30 PM - 8:00 PM
2025 HAEA Virtual Meet and Greet
Mar 25, 2025
7:00 PM - 8:00 PM
Community Connections Lunch Bay Area (Northern California)
Mar 15, 2025
12:30 PM - 3:30 PM
2025 Welcome to Congress Webinar
Mar 11, 2025
6:00 PM - 12:00 AM
HAEA Treatment Education Series Webinar: Tune In & Take Charge: You & HAE
Dec 5, 2024
7:00 PM - 8:00 PM
HAEA Virtual Self-Care Bingo Night!
Dec 3, 2024
7:30 PM - 8:30 PM
HAEA Treatment Education Series Webinar: Back to Takhzyro
Nov 21, 2024
7:00 PM - 8:00 PM
HAEA Community Connections Lunch in Massachusetts
Nov 16, 2024
12:00 PM - 12:00 AM
HAEA Community Connections Lunch in Tucson
Nov 9, 2024
12:00 PM - 2:00 PM
HAEA Community Connections Lunch in Puerto Rico
Nov 2, 2024
1:00 PM - 4:00 PM
HAE IN-MOTION Community Event (In-Person) - Chicago, IL
Oct 19, 2024
10:00 AM - 2:00 PM
HAEA Treatment Education Series Webinar: Bring FXIIa Into Focus
Oct 17, 2024
7:00 PM - 8:00 PM
2024 HAE IN-MOTION® - STEP IT UP FOR HAE VIRTUAL CHALLENGE
Sep 30, 2024
12:00 AM - 11:55 PM
HAEA Treatment Education Series Webinar: The Right Therapy Matters
Sep 25, 2024
7:00 PM - 8:00 PM
Community Connections Dinner in New York City
Aug 28, 2024
6:30 PM - 9:00 PM
HAEA Treatment Education Series Webinar: Living with HAE and Preparing for the School Year
Aug 22, 2024
7:00 PM - 8:00 PM
Medicare 101: Essentials You Need to Know!
Aug 1, 2024
7:00 PM - 8:00 PM
2024 HAEA Capitol Hill
Jul 13-16, 2024
HAEA Treatment Education Series Webinar: Now is the Time to Discover a Preventative Therapy That is Effective AND Convenient
Jun 27, 2024
7:00 PM - 8:00 PM
HAE IN-MOTION Community Event (In-Person) - Boston, MA
Jun 15, 2024
10:00 AM - 2:00 PM
HAEA Treatment Education Series Webinar: C1-Inhibitor to Treat the Root Cause of HAE
May 16, 2024
7:00 PM - 8:00 PM
HAEA Youth Leadership Training
May 9-12, 2024
HAEA Youth Leadership Training
HAEA Virginia Meet and Greet Lunch Event
Apr 27, 2024
12:30 PM - 12:00 AM
HAEA Treatment Education Series Webinar: From Awareness to Action: A Patient-Centric Discussion on Avoiding Triggers and the Roa
Apr 25, 2024
7:00 PM - 8:00 PM
HAE IN-MOTION Community Event (In-Person) - Dallas, TX
Apr 20, 2024
10:00 AM - 2:00 PM
HAEA Meet and Greet Lunch in Cleveland
Apr 13-Mar 13, 2024
2024 Welcome to Congress Webinar
Mar 7, 2024
1:00 PM - 5:00 PM
HAEA Meet and Greet Lunch Event in San Diego
Feb 17, 2024
12:30 PM - 12:00 AM
HAEA 2024 Virtual Meet & Greet
Feb 8, 2024
6:30 PM - 8:00 PM
HAEA Treatment Education Series Webinar: The Right Therapy Matters
Jan 24, 2024
7:00 PM - 8:00 PM
Hershey, PA In-Person Meet and Greet Lunch Event
Dec 16, 2023
12:30 PM - 2:30 PM
HAEA Treatment Education Series: Webinar: TAKHZYRO® (En Español)
Dec 7, 2023
7:00 PM - 8:00 PM
Boston Area In-Person Meet and Greet Lunch Event
Dec 2, 2023
12:30 PM - 2:30 PM
HAEA Treatment Education Series Webinar: The Right Therapy Matters
Nov 15, 2023
7:00 PM - 8:00 PM
HAEA Meet and Greet for Baby Boomers
Sep 26, 2023
7:00 PM - 8:30 PM
2023 HAE IN-MOTION® Step it up for HAE
Sep 21-22, 2023
HAEA Treatment Education Series Webinar: Open Enrollment
Sep 20, 2023
7:00 PM - 8:00 PM
2023 US HAEA Virtual Capitol Hill Day
Sep 12, 2023
3:00 PM - 12:00 AM
HAEA Webinar Brief: Medicare Prescription Drug Coverage (“Medicare Part D”) for People with HAE
Sep 7, 2023
7:00 PM - 8:00 PM
HAEA Treatment Education Series Webinar: Diagnosing & Managing All HAE Patient Types
Aug 24, 2023
7:00 PM - 8:00 PM
HAEA Treatment Education Series Webinar: A view of ORLADEYO (berotralstat) through people’s real-life experiences
Jun 29, 2023
7:00 PM - 8:00 PM
HAEA Virtual Meet and Greet Event for New Members
Jun 6, 2023
7:00 PM - 8:00 PM
Become an HAEA Hero
Jun 2-Oct 1, 2023
HAEA Treatment Education Series Webinar: C1-INH Replacement Therapy to Treat the Root Cause of HAE Attacks
May 18, 2023
7:00 PM - 8:00 PM
HAEA Treatment Education Series Webinar: Choosing the Path of Prevention: TAKHZYRO and Children
Apr 27, 2023
7:00 PM - 8:00 PM
HAEA Youth Advocacy Network Virtual Workshop - Welcome to Congress
Apr 19, 2023
7:00 PM - 8:30 PM
HAEA Virtual Meet and Greet for Parents and Caregivers
Apr 11, 2023
7:00 PM - 8:00 PM
Cincinnati, Ohio In-Person Meet and Greet Dinner Event
Mar 30, 2023
6:30 PM - 8:30 PM
The Right Therapy Matters (Sponsored by: CSL Behring)
Mar 29, 2023
7:00 PM - 8:00 PM
2023 US HAEA Legislative Update and Welcome to Congress Webinar
Mar 16, 2023
7:00 PM - 8:00 PM
Taking The Next Step: Navigating Young Adulthood with HAE (Sponsored by: BioCryst)
Feb 16, 2023
7:00 PM - 8:00 PM
Re-treating? Let's talk about it. (Sponsored by: Pharming)
Jan 26, 2023
7:00 PM - 8:00 PM
HAEA Treatment Education Series Webinar: Stop Letting HAE Attacks Interrupt Your Life
Dec 8, 2022
7:00 PM - 8:00 PM
December HAEA Meet & Greet 2022
Dec 6, 2022
6:30 PM - 8:00 PM
HAEA Treatment Education Series Webinar: Intimacy and HAE. Let’s talk about it.
Nov 17, 2022
7:00 PM - 8:00 PM
November HAEA Meet & Greet 2022
Nov 15, 2022
6:30 PM - 8:00 AM
HAEA Youth Advocacy and Awareness Workshop
Nov 9, 2022
7:30 PM - 8:30 PM
Managing an Unpredictable Disease: The Power of Conversation
Oct 27, 2022
7:00 PM - 8:00 PM
October HAEA Meet & Greet 2022
Oct 25, 2022
6:30 PM - 8:00 PM
HAEA Round Table: Baby Boomers
Oct 11, 2022
6:30 PM - 7:30 PM
HAEA Treatment Education Series Webinar: No Matter What Stage of Life, The Right Therapy Matters
Sep 29, 2022
7:00 PM - 8:00 PM
September HAEA Meet & Greet 2022
Sep 20, 2022
6:30 PM - 8:00 AM
Chicago HAEA Meet & Greet 2022
Sep 14-15, 2022
Guide for Women with Hereditary Angioedema (HAE) Webinar: Menopause and Aging
Aug 23, 2022
7:30 PM - 6:00 PM
HAEA Treatment Education Series Webinar: A deeper dive into HAE types. Let’s talk about it.
Aug 18, 2022
7:00 PM - 8:00 PM
August HAEA Meet & Greet 2022
Aug 16, 2022
6:30 PM - 8:00 AM
HAEA Round Table: For Young Adults
Aug 9-Jul 11, 2022
2022 HAE IN-MOTION® STEP IT UP FOR HAE
Jul 28-31, 2022
Guide for Women with Hereditary Angioedema (HAE) Webinar: Family Planning and Pregnancy
Jul 26, 2022
7:30 PM - 6:00 PM
HAEA Treatment Education Series Webinar: TAKHZYRO (lanadelumab) + You: Reimagine your life with HAE
Jul 21, 2022
7:00 PM - 8:00 PM
July HAEA Meet & Greet 2022
Jul 19, 2022
6:30 PM - 8:00 AM
Guide for Women with Hereditary Angioedema (HAE) Webinar: Pediatrics through Puberty
Jun 28, 2022
4:30 PM - 6:00 PM
June HAEA Meet & Greet 2022
Jun 21, 2022
6:30 PM - 8:00 AM
HAEA Treatment Education Series Webinar: Re-treating? Let’s talk about it.
Jun 16, 2022
7:00 PM - 8:00 PM
HAEA Round Table: For Youth with HAE Ages 16-20
Jun 14, 2022
6:30 PM - 7:30 AM
2022 HAEA Virtual Capitol Hill Campaign
Jun 7-11, 2022
HAEA Treatment Education Series Webinar: Attack Prevention That Is Big For HAE Yet So Small For Your Day
May 26, 2022
7:00 PM - 8:00 PM
May HAEA Meet & Greet 2022
May 24, 2022
6:30 PM - 8:00 AM
hae day :-) Amplify Rare Stories
May 17, 2022
9:25 AM - 9:50 AM
Conferencia HAEA PR: El Angioedema Hereditario, la Pandemia, los Avances y el Futuro
May 7, 2022
8:00 AM - 3:00 PM
April HAEA Meet & Greet 2022
Apr 19, 2022
6:30 PM - 8:00 AM
HAEA Treatment Education Series: The Emotional Toll of Living With HAE and Tips To Manage It
Apr 14, 2022
7:00 PM - 8:00 AM
HAEA Round Table: For Youth with HAE Ages 12-15 - Anxiety, Stress, and Growth with HAE
Apr 12, 2022
6:30 PM - 7:30 AM
HAEA Treatment Education Series Webinar: A Shared Voice: Developing a Hereditary Angioedema Treatment Plan with Your Physician
Mar 30, 2022
7:00 PM - 8:00 AM
March HAEA Meet & Greet 2022
Mar 15, 2022
6:30 PM - 8:00 AM
HAEA Webinar: 2022 Legislative Update and Welcome to Congress
Mar 3, 2022
7:00 PM - 8:00 AM
HAEA Round Table: For Kids with HAE Ages 5-11 - How Does It Feel to Be a Kid with HAE?
Feb 22, 2022
6:30 PM - 7:30 AM
HAEA Treatment Education Series Webinar: Two Journeys, One Goal: Raise Expectations of Living with a Rare Disease
Feb 16, 2022
7:00 PM - 8:00 AM
February HAEA Meet & Greet 2022
Feb 15, 2022
6:30 PM - 8:00 AM
HAEA Treatment Education Series Webinar: Navigating the Care Partner Journey with HAE
Jan 27, 2022
7:00 AM - 8:00 AM
January HAEA Meet & Greet 2022
Jan 25, 2022
6:30 PM - 8:00 AM
December Meet & Greet
Dec 14, 2021
6:30 PM - 8:00 AM
Conferencia vía Web de la HAEA: Progreso del tratamiento preventivo del AEH: conozca la primera y única terapia oral
Dec 9, 2021
7:00 PM - 8:00 AM
HAEA Treatment Education Series Webinar: Partner’s in Care: HAE in the Doctor’s Office
Nov 18, 2021
7:00 PM - 8:00 AM
November HAEA Meet & Greet
Nov 16, 2021
6:30 PM - 8:00 AM
HAEA Treatment Education Series Webinar: Preventative Treatment Progress in HAE: Learn About the First and Only Oral Therapy Des
Oct 21, 2021
7:00 PM - 8:00 AM
October HAEA Meet & Greet
Oct 19, 2021
12:00 AM - 12:00 AM
2021 HAEA Virtual Capitol Hill Campaign
Oct 15-23, 2021
HAEA Treatment Education Series Webinar: The Emotional Toll of Living With HAE and Tips To Manage It
Sep 29, 2021
7:00 PM - 8:00 AM
September HAEA Meet & Greet
Sep 21, 2021
12:00 AM - 12:00 AM
August HAEA Meet & Greet
Aug 10, 2021
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar
Jul 29, 2021
7:00 AM - 8:00 AM
July HAEA Meet & Greet
Jul 20, 2021
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Shared decision making
Jun 10, 2021
7:00 PM - 8:00 AM
June HAEA Meet & Greet
Jun 8-9, 2021
2021 HAE IN-MOTION® Virtual Challenge
May 16-Jul 31, 2021
2021 HAEA Virtual Summit Series
May 16, 2021
12:00 AM - 12:00 AM
May HAEA Meet & Greet
May 11, 2021
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Stop Letting HAE Attacks Interrupt Your Life
May 6, 2021
6:00 PM - 7:30 AM
HAEA Treatment Education Series Webinar: Raising Awareness on hae day :-) and Beyond: How to be an Advocate by Telling Your Stor
Apr 29, 2021
12:00 AM - 12:00 AM
April HAEA Meet & Greet
Apr 20, 2021
12:00 AM - 12:00 AM
March HAEA Meet & Greet
Mar 16, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (age 23-25)
Mar 11, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 20-22)
Mar 4, 2021
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar
Feb 25, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 17-19)
Feb 18, 2021
12:00 AM - 12:00 AM
February HAEA Meet & Greet
Feb 16, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 14-16)
Feb 11, 2021
12:00 AM - 12:00 AM
HAEA Webinar: 2021 Legislative Update and Welcome to Congress
Feb 9, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 11-13)
Feb 4, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 8-10)
Jan 28, 2021
12:00 AM - 12:00 AM
January HAEA Meet & Greet
Jan 26, 2021
12:00 AM - 12:00 AM
#TogetherApart Youth Meet and Greet (ages 5-7)
Jan 21, 2021
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: A new oral treatment for the prevention of HAE attacks
Dec 16, 2020
12:00 AM - 12:00 AM
Minneapolis Virtual Meet & Greet
Dec 15, 2020
12:00 AM - 12:00 AM
Conferencia vía Web de la HAEA: Manejando el Angioedema Hereditario en tiempos de COVID-19
Dec 12, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Managing HAE for you and your family
Dec 10, 2020
12:00 AM - 12:00 AM
Seattle Virtual Meet & Greet
Dec 1, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Preparing for the holidays in a COVID-19 world
Nov 19, 2020
12:00 AM - 12:00 AM
Kansas City Virtual Meet & Greet
Nov 17, 2020
12:00 AM - 12:00 AM
Pennsylvania Virtual Meet & Greet
Oct 29, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Reimagine your HAE treatment and hear the latest about a Takeda therapy.
Oct 28, 2020
12:00 AM - 12:00 AM
2020 HAEA Virtual Capitol Hill Day
Oct 21, 2020
12:00 AM - 12:00 AM
Nevada Virtual Meet & Greet
Oct 20, 2020
12:00 AM - 12:00 AM
Upstate NY Virtual Meet & Greet
Oct 6, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Navigating Virtual Appointments
Sep 24, 2020
12:00 AM - 12:00 AM
Colorado Virtual Meet & Greet
Sep 22, 2020
12:00 AM - 12:00 AM
Nico's Surprise Campfire Launch Party
Sep 18, 2020
1:10 PM - 12:00 AM
HAEA Webinar: COVID-19 and HAE - Hear what Expert Angioedema Physicians Have to Say
Sep 17, 2020
12:00 AM - 12:00 AM
Chicago Virtual Meet & Greet
Sep 8, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: HAE and Back to School
Aug 27, 2020
12:00 AM - 12:00 AM
Salt Lake City Virtual Meet & Greet
Aug 25, 2020
12:00 AM - 12:00 AM
2020 HAE IN-MOTION Virtual Challenge
Aug 24-Sep 30, 2020
Texas Virtual Meet & Greet
Aug 12, 2020
12:00 AM - 12:00 AM
HAEA Youth Edition Webinar: Finding your Voice and Advocating for Yourself at School
Aug 11, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Self-advocacy, Insurance, & You: Navigating health insurance in times of transition
Jul 30, 2020
12:00 AM - 12:00 AM
Southern California Virtual Meet & Greet
Jul 28, 2020
12:00 AM - 12:00 AM
HAEA Parent Edition Webinar: Advocating for Your Child at School
Jul 21, 2020
12:00 AM - 12:00 AM
Florida Virtual Meet & Greet
Jul 15, 2020
12:00 AM - 12:00 AM
Chronic Disease Day
Jul 10, 2020
12:00 AM - 12:00 AM
New England Virtual Meet & Greet
Jul 1, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: The Right Therapy Matters. Keep HAE Attacks from Getting in Your Way.
Jun 25, 2020
12:00 AM - 12:00 AM
Wheaton, IL HAE IN-MOTION 5K® (POSTPONED)
Jun 20, 2020
12:00 AM - 12:00 AM
Nashville Virtual Meet & Greet
Jun 17, 2020
12:00 AM - 12:00 AM
Memphis Awareness Walk (POSTPONED)
Jun 6, 2020
12:00 AM - 12:00 AM
Virtual Inland North West Meet & Greet
Jun 3, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: HAE Science and Advocacy: A Closer Look
May 28, 2020
12:00 AM - 12:00 AM
Virtual New Mexico Monday Meet & Greet
May 18, 2020
12:00 AM - 12:00 AM
Lyndon's walk across America for HAE 2020 (POSTPONED)
May 16, 2020
12:00 AM - 12:00 AM
Shred415 x HAEA Fundraiser (POSTPONED)
May 16, 2020
12:00 AM - 12:00 AM
Virtual Virginia Monday Meet & Greet
May 4, 2020
12:00 AM - 12:00 AM
Denver, CO HAEA Meet & Greet (POSTPONED)
May 3, 2020
12:00 AM - 12:00 AM
hae day :-) Stepping Forward Together Virtual Walk
May 1-31, 2020
HAEA Webinar: The Legislative repercussions of COVID-19 - Keeping up with the changing rules, regulations and available resource
Apr 30, 2020
12:00 AM - 12:00 AM
Boston, MA HAEA Meet & Greet (POSTPONED)
Apr 26, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar - Knowledge is power: navigating HAE with your doctor
Apr 23, 2020
12:00 AM - 12:00 AM
Puerto Rico HAEA Meet & Greet (POSTPONED)
Apr 19, 2020
12:00 AM - 12:00 AM
HAEA Webinar: HAE and the COVID-19 UPDATE
Apr 16, 2020
12:00 AM - 12:00 AM
HAEA Youth Edition Webinar: HAE and The Importance of Youth Advocacy
Apr 14, 2020
12:00 AM - 12:00 AM
HAEA Webinar: COVID-19 (Coronavirus) and Staying Mentally Healthy
Apr 9, 2020
12:00 AM - 12:00 AM
REPLAY- HAEA Webinar: HAE and COVID-19 (Coronavirus)
Apr 4, 2020
12:00 AM - 12:00 AM
Conferencia vía Web de la HAEA: Angioedema Hereditario y el COVID-19 (Coronavirus)
Mar 28, 2020
12:00 AM - 12:00 AM
Cincinnati, OH HAEA Meet & Greet (POSTPONED)
Mar 26, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: The emotional toll of living with HAE — and tips to manage it
Mar 25, 2020
12:00 AM - 12:00 AM
Charlotte, NC HAEA Meet & Greet
Mar 8, 2020
12:00 AM - 12:00 AM
HAEA Webinar: HAE 2020 Legislative Agenda
Mar 5, 2020
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar - Advocacy: Make a difference for yourself, your family and the HAE community!
Feb 27, 2020
12:00 AM - 12:00 AM
Atlanta, GA HAEA Meet & Greet
Feb 23, 2020
12:00 AM - 12:00 AM
HAEA Youth Edition Webinar: Cookies for HAE
Feb 6, 2020
12:00 AM - 12:00 AM
Phoenix, AZ HAEA Meet & Greet
Jan 26, 2020
12:00 AM - 12:00 AM
HAEA Webinar- HAE and Medicare: What you need to know
Jan 23, 2020
12:00 AM - 12:00 AM
HAEA Webinar: The Importance of Clinical Trials – Leading the way to HAE Treatments.
Dec 5, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: HAE, the holidays and you
Nov 14, 2019
12:00 AM - 12:00 AM
Capitol Hill Day 2019 *By Invitation Only*
Oct 23-24, 2019
Capitol Hill Day 2019 *By Invitation Only*
Capitol Hill Day 2019 *By Invitation Only*
Oct 23-24, 2019
Capitol Hill Day 2019 *By Invitation Only*
HAEA Treatment Education Series Webinar: The Importance of having the right on-demand treatment
Oct 17, 2019
12:00 AM - 12:00 AM
Ft Lauderdale, FL TopGolf
Oct 13, 2019
2:00 PM - 5:00 PM
Ft Lauderdale, FL TopGolf
TopGolf Miami Gardens, FL
Oct 13, 2019
12:00 AM - 12:00 AM
TopGolf Miami Gardens, FL
HAE IN-MOTION 5K walk/run
Oct 5, 2019
12:00 AM - 12:00 AM
HAEA Youth Edition Webinar: Youth Advocacy Month #BeyondHAE
Oct 3, 2019
12:00 AM - 12:00 AM
HAE IN-MOTION Awareness Walk
Sep 28, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Community Members Share Their Experience With The Only C1-INH Subcutaneous Therapy
Sep 25, 2019
12:00 AM - 12:00 AM
HAE IN-MOTION 5K walk/run
Sep 14, 2019
12:00 AM - 12:00 AM
HAEA Webinar: 2020 Open Enrollment
Sep 12, 2019
12:00 AM - 12:00 AM
HAE IN-MOTION Awareness Walk
Sep 7, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Navigating School with HAE
Aug 27, 2019
12:00 AM - 12:00 AM
HAE IN-MOTION 5K walk/run
Jul 28, 2019
12:00 AM - 12:00 AM
2019 HAEA National Patient Summit
Jul 26-28, 2019
2019 HAEA National Patient Summit
HAEA Youth Edition Webinar: All About the 2019 Patient Summit Youth Program
Jul 15, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Managing HAE in Your Family
Jul 10, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Managing HAE in Your Family
HAEA Treatment Education Series Webinar: HAE, Wellness and You
Jun 18, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: HAE, Wellness and You
HAE IN-MOTION 5K walk/run
Jun 15, 2019
12:00 AM - 12:00 AM
Columbia, SC HAE Day event
May 16, 2019
12:00 AM - 12:00 AM
Columbia, SC HAE Day event
Oakfield, NY HAE Day Event
May 16, 2019
12:00 AM - 12:00 AM
Oakfield, NY HAE Day Event
Cullman, AL Meet & Greet
May 11, 2019
11:00 AM - 1:00 PM
Cullman, AL Meet & Greet
Lyndon's Walk Across America 2019
May 11, 2019
12:00 AM - 12:00 AM
Lyndon's Walk Across America 2019
HAEA Meet & Greet- Cullman, AL
May 11, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Cullman, AL
Lyndon's Walk Across America for HAE
May 11, 2019
12:00 AM - 12:00 AM
Lyndon's Walk Across America for HAE
HAEA Treatment Education Series Webinar: Advocating For Yourself
May 7, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Advocating For Yourself
HAE IN-MOTION Awareness Walk ***CANCELED DUE TO WEATHER***
May 4, 2019
12:00 AM - 12:00 AM
Advance HAE Info Kit
May 1-Jun 1, 2019
Advance HAE Info Kit
HAEA Treatment Education Series Webinar: Women and HAE
Apr 25, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Women and HAE
Ann Arbor, MI Meet & Greet
Apr 24, 2019
6:00 PM - 9:00 PM
Ann Arbor, MI Meet & Greet
HAEA Meet & Greet- Ann Arbor, Michigan
Apr 24, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Ann Arbor, Michigan
HAE Youth Edition Webinar: Understanding Anxiety and HAE
Apr 17, 2019
12:00 AM - 12:00 AM
HAE Youth Edition Webinar: Understanding Anxiety and HAE
Tampa, Florida Meet & Greet
Apr 10, 2019
6:00 PM - 9:00 PM
Tampa, Florida Meet & Greet
HAEA Meet & Greet- Tampa, FL
Apr 10, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Tampa, FL
Scottsdale. AZ Topgolf
Apr 7, 2019
2:00 PM - 5:00 PM
Scottsdale. AZ Topgolf
Grab a Tee for HAE
Apr 7, 2019
12:00 AM - 12:00 AM
Northern VA Meet & Greet
Apr 4, 2019
6:00 PM - 8:00 PM
Northern VA Meet & Greet
HAEA Meet & Greet- Northern, VA
Apr 4, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Northern, VA
Cincinnati, OH Meet & Greet
Mar 29, 2019
6:00 PM - 9:00 PM
Cincinnati, OH Meet & Greet
HAEA Meet & Greet- Cincinnati, OH
Mar 29, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Cincinnati, OH
Cincinnati Red's Opening Day Parade- Cincinnati Ohio
Mar 28, 2019
12:00 AM - 12:00 AM
Cincinnati Red's Opening Day Parade- Cincinnati Ohio
Cincinnati Reds Opening Day Parade
Mar 28, 2019
12:00 AM - 12:00 AM
Cincinnati Reds Opening Day Parade
HAEA Treatment Education Series Webinar: Discover First-of-their-Kind HAE Treatment Options
Mar 26, 2019
12:00 AM - 12:00 AM
HAEA Treatment Education Series Webinar: Discover First-of-their-Kind HAE Treatment Options
New York Meet & Greet
Mar 17, 2019
12:30 PM - 3:30 PM
New York Meet & Greet
HAEA Meet & Greet- New York, NY
Mar 17, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- New York, NY
Philadelphia Meet & Greet
Mar 16, 2019
6:00 PM - 8:00 PM
Philadelphia Meet & Greet
Union, NJ St Patrick's Day Parade
Mar 16, 2019
1:00 PM - 3:00 PM
Union, NJ St Patrick's Day Parade
St Patrick's Day Parade- Union, NJ
Mar 16, 2019
12:00 AM - 12:00 AM
St Patrick's Day Parade- Union, NJ
HAEA Meet & Greet- Philadelphia, PA
Mar 16, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Philadelphia, PA
HAEA Meet & Greet- New Jersey
Mar 15, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- New Jersey
Hamilton, Ohio Dine to Donate
Feb 28, 2019
3:00 PM - 10:00 PM
Hamilton, Ohio Dine to Donate
HAE Day :-) 2019 Virtual walk/run
Feb 28-May 16, 2019
Dine to Donate- Hamilton, Ohio
Feb 28, 2019
12:00 AM - 12:00 AM
Dine to Donate- Hamilton, Ohio
HAEA Meet & Greet- San Francisco
Feb 21, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- San Francisco
1st Quarter YLC Group Chat 2019
Feb 21, 2019
12:00 AM - 12:00 AM
1st Quarter YLC Group Chat 2019
Dallas, TX Meet & Greet
Feb 10, 2019
5:00 PM - 8:00 PM
Dallas, TX Meet & Greet
HAEA Meet & Greet- Dallas Texas
Feb 10, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Dallas Texas
LA Meet & Greet
Jan 27, 2019
1:00 PM - 3:00 PM
LA Meet & Greet
HAEA Meet & Greet- Los Angeles
Jan 27, 2019
12:00 AM - 12:00 AM
HAEA Meet & Greet- Los Angeles
Open Mic Night
Nov 30, 2018
12:00 AM - 12:00 AM
HAE IN-MOTION 5K (TX)
Nov 17, 2018
12:00 AM - 12:00 AM
ACAAI Exhibit
Nov 15-19, 2018
2018 4th Quarter YLC Group Chat
Nov 15, 2018
12:00 AM - 12:00 AM
2018 4th Quarter YLC Group Chat
Kansas City HAEA Meet & Greet
Nov 14, 2018
6:00 PM - 9:00 PM
Kansas City HAEA Meet & Greet
Kansas City HAEA Meet & Greet
Nov 14, 2018
12:00 AM - 12:00 AM
Kansas City HAEA Meet & Greet
HAE IN-MOTION 5K (OK)
Nov 10, 2018
12:00 AM - 12:00 AM
HAE IN-MOTION 5K (FL)
Oct 20, 2018
12:00 AM - 12:00 AM
HAE IN-MOTION 5K (RI)
Oct 6, 2018
12:00 AM - 12:00 AM
Pam King HAEA Scholarship Program Benefit Event
Oct 5, 2018
6:00 PM - 9:00 PM
Pam King HAEA Scholarship Program Benefit Event
1st Annual Pam King HAEA Scholarship Program Benefit Event
Oct 5, 2018
12:00 AM - 12:00 AM
1st Annual Pam King HAEA Scholarship Program Benefit Event
ACEP Exhibit
Oct 1-4, 2018
HAE IN-MOTION 5K (NJ)
Sep 22, 2018
12:00 AM - 12:00 AM
HAE IN-MOTION 5K (OR)
Sep 8, 2018
12:00 AM - 12:00 AM
HAE IN-MOTION 5K (IL)
Aug 4, 2018
12:00 AM - 12:00 AM
2018 3rd Quarter YLC Group Chat
Aug 2, 2018
12:00 AM - 12:00 AM
2018 3rd Quarter YLC Group Chat
Capitol Hill Day & Teen/Youth Program (By Invitation Only)
Jul 18-21, 2018
Capitol Hill Day & Teen/Youth Program (By Invitation Only)
Capitol Hill Day 2018 *By Invitation Only*
Jul 18-22, 2018
Capitol Hill Day 2018 *By Invitation Only*
HAE IN-MOTION 5K (NE)
Jun 2, 2018
12:00 AM - 12:00 AM
Wouldn't it be Swell to find a CURE
May 18, 2018
11:00 AM - 12:00 AM
Wouldn't it be Swell to find a CURE
Wouldn't it be Swell to find a CURE
May 18, 2018
12:00 AM - 12:00 AM
Wouldn't it be Swell to find a CURE
HAEi Conference
May 17-20, 2018
Maud Devine-Spreading Awareness for HAE
May 16, 2018
12:00 AM - 12:00 AM
Maud Devine-Spreading Awareness for HAE
Global Summit 2018
May 14-22, 2018
Show Your Swell 5k-2018
May 13, 2018
9:15 AM - 2:00 PM
Show Your Swell 5k-2018
5th Annual Show Your Swell 5K
May 13, 2018
12:00 AM - 12:00 AM
5th Annual Show Your Swell 5K
Lyndon's Walk Across America
May 12, 2018
11:00 AM - 9:00 PM
Lyndon's Walk Across America
Lyndon's Walk Across America for HAE
May 12-13, 2018
Lyndon's Walk Across America for HAE
2018 HAE Abby Glow Golf Event
May 5, 2018
3:00 PM - 11:00 PM
2018 HAE Abby Glow Golf Event
2018 HAE Abby Glow Golf Event
May 5-6, 2018
2018 HAE Abby Glow Golf Event
HAE Awareness in of honor Luci Toman
Apr 28, 2018
4:00 PM - 7:00 PM
HAE Awareness in of honor Luci Toman
HAE IN-MOTION 5K (CT)
Apr 28, 2018
12:00 AM - 12:00 AM
HAE Awareness in honor of Luci Toman
Apr 28, 2018
12:00 AM - 12:00 AM
HAE Awareness in honor of Luci Toman
Wear Jeans for Rare Genes
Apr 23-27, 2018
Wear Jeans for Rare Genes
Wear Jeans for Rare Genes
Apr 23-27, 2018
Wear Jeans for Rare Genes
Luci's Slot Car Drag Race 4 HAE Awareness
Apr 21, 2018
1:00 PM - 12:00 AM
Luci's Slot Car Drag Race 4 HAE Awareness
Luci's 2nd Annual Slot Car Drag Race for HAE Awareness
Apr 21, 2018
12:00 AM - 12:00 AM
Luci's 2nd Annual Slot Car Drag Race for HAE Awareness
2018 2nd Quarterly YLC Group Meeting
Apr 19, 2018
7:00 PM - 12:00 AM
2018 2nd Quarterly YLC Group Meeting
2018 Reds Opening Day parade
Apr 2, 2018
12:00 AM - 12:00 AM
2018 Reds Opening Day parade
The 2018 Reds Opening Day Parade
Apr 2, 2018
12:00 AM - 12:00 AM
The 2018 Reds Opening Day Parade
AAAAI/WHO Joint Congress Exhibit
Mar 2-6, 2018
AAAAI/WHO Joint Congress Exhibit
5K - Fairview, OR - 9/8/18
Jan 30-Nov 30, 2018
5K - Fairview, OR - 9/8/18
5K - Austin, TX - 11/18/2017
Nov 18-Dec 31, 2017
5K - Austin, TX - 11/18/2017
5K - Littleton, CO - 10/22/17
Oct 22, 2017
9:00 AM - 12:00 PM
5K - Littleton, CO - 10/22/17
5K - Providence, RI - 10/7/17
Oct 7, 2017
9:00 AM - 12:00 PM
5K - Providence, RI - 10/7/17
5K - DeKalb, IL - 4/9/17
Sep 30, 2017
11:00 AM - 2:00 PM
5K - DeKalb, IL - 4/9/17
5K - Orlando, FL - 11/13/16
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Orlando, FL - 11/13/16
5K - Atlanta, GA - 10/22/16
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Atlanta, GA - 10/22/16
5K - Collegeville, PA - 6/18/16
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Collegeville, PA - 6/18/16
5K - Wheaton, IL - 8/13/16
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Wheaton, IL - 8/13/16
5K - Cullman, AL - 5/13/17
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Cullman, AL - 5/13/17
5K - Wheaton, IL - 5/20/17
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Wheaton, IL - 5/20/17
5K - Warminster, PA - 4/1/17
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Warminster, PA - 4/1/17
5K - Omaha, NE - 6/10/17
Sep 30, 2017
8:00 AM - 11:00 AM
5K - Omaha, NE - 6/10/17
5K - San Juan, PR - 4/30/17
Sep 30, 2017
7:00 AM - 10:00 AM
5K - San Juan, PR - 4/30/17
5K - Cranford, NJ - 9/23/17
Sep 23, 2017
9:00 AM - 12:00 PM
5K - Cranford, NJ - 9/23/17
5K - Bloomington, MN - 9/17/17
Sep 17, 2017
8:00 AM - 11:00 AM
5K - Bloomington, MN - 9/17/17
2017 Patient Summtt
Sep 16-17, 2017
2017 Patient Summtt
5K - Harrison, OH - 9/10/16
Sep 10, 2017
8:00 AM - 11:00 AM
5K - Harrison, OH - 9/10/16
5K - Harrison, OH - 9/9/17
Sep 9, 2017
8:00 AM - 11:00 AM
5K - Harrison, OH - 9/9/17
Miami Whitewater Forest 5K
Sep 9, 2017
12:00 AM - 12:00 AM
Miami Whitewater Forest 5K
5K - San Diego, CA - 11/6/2016
Nov 6, 2016-Sep 30, 2017
5K - San Diego, CA - 11/6/2016
5K - Providence, RI - 10/9/2016
Oct 9, 2016-Sep 30, 2017
5K - Providence, RI - 10/9/2016
5K - San Juan, PR - 7/10/16
Jul 10, 2016-Sep 30, 2017
5K - San Juan, PR - 7/10/16
5K - Omaha, NE - 6/5/2016
Jun 5, 2016-Sep 30, 2017
5K - Omaha, NE - 6/5/2016
Takeda C1 INH Normal trial
Jan 1, 1970
12:00 AM - 12:00 AM
Takeda C1 INH Normal trial
Global Conference 2020 - Frankfurt, Germany
Jan 1, 1970
12:00 AM - 12:00 AM
Global Conference 2020 - Frankfurt, Germany
Women and HAE
Jan 1, 1970
12:00 AM - 12:00 AM
Women and HAE
Understanding Anxiety and HAE Webinar
Jan 1, 1970
12:00 AM - 12:00 AM
Understanding Anxiety and HAE Webinar
Takeda Webinar 1
Jan 1, 1970
12:00 AM - 12:00 AM
Takeda Webinar 1
New Jersey Meet & Greet
Jan 1, 1970
12:00 AM - 12:00 AM
New Jersey Meet & Greet
2018 1st Quarter YLC Group Chat
Jan 1, 1970
12:00 AM - 12:00 AM
2018 1st Quarter YLC Group Chat
5K - Davie, FL - 10/20/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Davie, FL - 10/20/18
BioCryst Apex-2 Clinical Trial
Jan 1, 1970
12:00 AM - 12:00 AM
BioCryst Apex-2 Clinical Trial
5K - Cedar Park, TX - 11/18/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Cedar Park, TX - 11/18/18
5K - Providence, RI - 10/6/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Providence, RI - 10/6/18
5K - Cranford, NJ - 9/22/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Cranford, NJ - 9/22/18
5K - Wheaton, IL - 8/4/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Wheaton, IL - 8/4/18
5K - Lincoln, NE - 6/2/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Lincoln, NE - 6/2/18
5K - Farmington, CT - 4/28/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Farmington, CT - 4/28/18
5K - DeKalb, IL - 4/22/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - DeKalb, IL - 4/22/18
5K - Henderson, NV - 3/24/18
Jan 1, 1970
12:00 AM - 12:00 AM
5K - Henderson, NV - 3/24/18
Global Conference 2018
Jan 1, 1970
12:00 AM - 12:00 AM
Global Conference 2018
2nd Annual Give Back to fight Attacks
Jan 1, 1970
12:00 AM - 12:00 AM
2nd Annual Give Back to fight Attacks
E.R. Toolkit
Jan 1, 1970
12:00 AM - 12:00 AM
E.R. Toolkit
Efficacy and Safety
Jan 1, 1970
12:00 AM - 12:00 AM
Efficacy and Safety
Cinryze- Subcutaneous
Jan 1, 1970
12:00 AM - 12:00 AM
Cinryze- Subcutaneous
Safety and Efficacy
Jan 1, 1970
12:00 AM - 12:00 AM
Safety and Efficacy
OPuS-2: A multicente
Jan 1, 1970
12:00 AM - 12:00 AM
OPuS-2: A multicente
CSLB Berinert SC Pro
Jan 1, 1970
12:00 AM - 12:00 AM
CSLB Berinert SC Pro
Safety Study of Icat
Jan 1, 1970
12:00 AM - 12:00 AM
Safety Study of Icat
Berinert Safety Regi
Jan 1, 1970
12:00 AM - 12:00 AM
Berinert Safety Regi
Ecallantide Use for
Jan 1, 1970
12:00 AM - 12:00 AM
Ecallantide Use for
